Hello, reader. How are you doing? You know my darling Ming has narcolepsy, a sleep disorder. Everyone has been sleepy, but only some people have narcolepsy. I’m always thinking about being disabled in community, and how disabled people are understood and misunderstood, in our homes and out in the world. I want to help make… Read More »
This open letter to YouTube is asking for justice for poor and disabled people who have different sensory needs because of autism. Dear YouTube: Thank you for gathering so much music into one place. I’ve used your website for many years, steadfast as friends went to spotify–even before then, as friends used Pandora. I like… Read More »
Hello, reader. How are you doing? I’ve changed so much, since Ming and I moved to Oregon last year. Yay–I’m so grateful for everything I’ve learned. A favorite way I’ve changed is I’ve become comfortable cooking for community. Food is love. Many a baby is fed by the body of their own mama. We… Read More »
“What’s the difference between support and enabling?” Ming asked me. “It’s support when your therapist likes it, and it’s enabling when your therapist doesn’t like it,” I said. Ming laughed–he liked that distinction. “It’s support when you’re helping people do ‘good’ things, like exercise and go to the doctor and talk about their feelings. It’s… Read More »
“Thank you for what you’ve done, to escape from prison,” I said to my housemate. We were at the dining room table, both eating dinner late. He had served himself up a big, beautiful plate of food: roasted veg, dumplings, and spinach salad. We had just been talking about food justice, how crappy food is… Read More »
“Any stove that’s electric is not really a stove–it’s a glorified hot plate,” I said, pondering natural gas. “There–I said it. Fire is totally different for cooking, than a ridiculously hot coil of metal. Sorry. Cooking feels so different with a flame.” Ming and I were lying in bed. It was early in the morning,… Read More »
Hello, reader. How are you? This is my gratitude for late April. Please join me in celebrating the goodness that fills my life. eyes I’m so glad my eyes got better. I had an illness which started as a cold, then a week of gastrointestinal distress, then my eyes got gunky / gummy and hurting… Read More »
Hello, reader. How are you today? I’ve been thinking about empathy disability. I keep blogging about that disability justice fat liberation skillshare I led for my community, here in Kalapuya land. The skillshare meant a lot to me and stirred up big thoughts and feelings. I was so vulnerable to people I know so newly.… Read More »
Hello, how are you doing? Disabled and cute, like me? Maybe fat and happy, like me. Or tired and brilliant, like Ming. Good hearted, like both of us. I want to tell you about timing for events, when it comes to disabled people. timing I hate when events are not kept to schedule. Feels sketch… Read More »
Hello, how are you doing? Life’s good in Oregon. Been thinking about how balance in relationships is justice. So many people do work to change culture at large scale. Then they neglect the interpersonal ways that we need to do justice at home too. Please love me right. Please do justice in love. airtime One… Read More »