Hello, I’ve been thinking a lot about narcolepsy, which is a disability that Ming has. It’s probably his main disability. Here is Ming doing narcolepsy skillfully. Yes, good job hitting the bed. In the right direction, even. what it is Narcolepsy is about falling asleep when you’re not supposed to, and staying awake when you’re… Read More »
We’ve been taking abandoned cactus from the community garden. First was a succulent. It was dried up and looked almost dead, when we captured it. It’s so pretty now! And about to bloom. Then we took this cow tongue cactus. It was dried up too but still alive. Now it’s plump and happy, growing a… Read More »
Hello. I made a new zine: mad mappin. It’s colorful! It’s a mini and a different size than usual, at one-sixth size. I cut each piece of paper into thirds, and then those strips are folded in half. I really needed to do something different! So I’m happy that I could make that a reality,… Read More »
Happy birthday to Stacey Park Milbern, my disability justice hero. She would have been 35 on May 19. I didn’t know her, but I love her. She’s my disabled ancestor. The morning of her birthday, Ming and I listened to her crip socks essay that I read aloud and posted on my soundcloud. I hugged… Read More »
This is how I think of religion and spirituality. sacred beautiful holy connective passionate restorative healing creative earthy observant alive atuned transformative diy fun Ritual is one of the deepest kinds of fun I know. It’s fun for my whole self, aligning all the aspects of me, and aligning with the cycles of nature also.… Read More »
Hello, we’re moving. I decided to share with you the letter I wrote to the supporters of Nevada Desert Experience announcing our departure. It was fun to write, but the paragraph thanking the holy people is edgy! happy May Day Dear peace supporters of Nevada Desert Experience, Hello and happy May Day from the desert,… Read More »
Oh hey. I am not Native American. My dad was a white guy born in England. My mom was a Mexican-American person born in United States. New Mexico is where my peeps on that side are from. Yesterday I recorded my favorite Chencho song, Borders Crossed Us. Please give it a listen, if you get… Read More »
Hello, do you have a bucket list? I used to think they were silly. Then I tried making one, and it was fun to dream. For a long time, going to Manzanar with Ming was on my bucket list. big map We were in Beatty on a brief getaway, resting elsewhere. It was our last… Read More »
Hello, I recorded a new poem “disabled dancing.” I wrote it a few days ago after chalice circle. We’d been talking about pets, and I was thinking a lot about teeth. How some people get their pets’ teeth cleaned, but I live with elders who’ve been chronically homeless, and mostly they don’t have teeth. I… Read More »
Imagine if the truth about our own bodies and needs was trusted. If we weren’t expected to hand over our power. If medical pathologizing wasn’t the only way to have our health needs seen as legitimate. I’ve been thinking about this for a long time, since a friend told me that people like me need… Read More »